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Please contact our office for additional resource information such as
Adapted/Modified Bikes, Adaptive Equipment and Assistive Technology,
Adaptive Sports
Programs, Autism Resources, Funding Resources, Hippotherapy, Interpreter
Services,
Mental Health
Professionals, Ophthalmologists and Optometrists, Pedorthotists, Travel
Resource Information, Wheelchairs and Lifts and Ramps, and Many More…
National Associations
Cleft Palate Foundation (CPF)
CLEFTLINE (800)24-CLEFT; (919) 933-9044
Hydrocephalus Association
Kempe Foundation
Mothers United for Moral Support (MUMS)
(920) 336-5333; Families call (877) 336-5333
National Dissemination Center for
Children with Disabilities
National Down Syndrome Congress (NDSC)
(800) 232-NDSC
National Down Syndrome Society (ndss)
(800) 221-4602
National MPS Society
(207) 947-1445
National Organization for Rare Disorders (NORD)
(203) 744-0100 www.children-special-needs.org
Osteogenesis Imperfecta
Foundation
(800) 981-2663
Prevent Blindness America
(800) 331-2020
United Brachial Plexus Network
(866) 877-7004
United Mitochondrial Disease Foundation
(412) 793-8077
State and Local Associations for Persons with Disabilities
Brain Injury Association of Wisconsin
(262) 790-9660; toll free family helpline (800) 882-9282
Children & Adults with Attention-Deficit / Hyperactivity Disorder
(CHADD) of SE WI
(414) 299-9442
http://www.chadd.net/template.cfm?affid=150&p=about
Down Syndrome Association of Wisconsin (DSAW)
(414) 355-1404; toll free (866) 327-3729
Epilepsy Foundation – Southeast Wisconsin
(414) 271-0110
www.epilepsyfoundationsewi.org
Muscular Dystrophy Association (MDA)
Milwaukee Chapter (414) 453-7600
Prader-Willi Syndrome Association of Wisconsin
(866) 797-2947
Spina Bifida Association of Southeastern Wisconsin
(414) 607-9061
United Cerebral Palsy of Southeastern Wisconsin
(414) 329-4500 or toll-free (888) 482-7739
(262) 798-2060 or
toll free (800) 472-7720
Wisconsin Upside Down Foundation, Inc.
(262) 443-8690
Advocacy Groups and Resources
A Wisconsin-based, nonprofit, public interest law firm
dedicated to linking children and families, particularly those with
special health care needs, to health care benefits and services.
(608) 261-6939 or (800) 585-4222
ARC
of Greater Milwaukee
Serving individuals with disabilities and their families by providing
advocacy, a training and resource center, corporate guardianship, case
management, and a trust program
(414) 774-6255
ARCh (Association for Rights of Citizens with handicaps)
Provides information, training, and support for parents and
family members of people with disabilities through newsletters, parent
support groups, and informational meetings.
(262) 542-9811
Catalyst Center
A national center dedicated to improving health care
insurance and financing
The Commonwealth Fund
A private foundation working toward a high performance
health system
Disability Advocates: Wisconsin Network (DAWN)
Statewide grassroots cross-disability network of people who
care about disability issues. DAWN supports legislative change in the
programs and systems affecting people with all disabilities. (608) 266-7826; TTY (608) 266-6660
Disability Rights Wisconsin
Provides protection and advocacy for persons with disabilities and helps
people gain access to services and opportunities through advocacy and
legal resources.
(414) 773-4646; TTY (888) 758-6049
Family Support 360
Public resource library, resource links, and news and
events page for a variety of information and resources designed to help
organizations support individuals with developmental disabilities and
their families.
Family Voices of Wisconsin
Works with families to inform and influence public policy by providing
information to families, convening focus groups, sharing information
with legislators and policy makers, and participating in statewide
systems change efforts.
Kaiser Family Foundation
A non-profit private operating foundation focusing on the
major health care issues facing the nation.
Life in Motion
Information and resources about specific movement disorders
(866) 546-3136
Maternal and Child Health Hotline
Provides information on various programs for pregnant
women, children, and families such as BadgerCare Plus, HealthCheck,
Prenatal Care Coordination, WIC, Wisconsin Medicaid Family Planning
Waiver, and others.
(800) 722-2295 Voice/TTY
Provides workshops, publications, and other resources to
help families make decisions about education, vocational training,
employment, and other services for children and young adults with
special needs.
A non-profit organization offering parents and caregivers
the opportunity to connect one-to-one with a parent of a child with
similar special needs.
(715) 361-2890; Families call (888) 266-0028
Parents Plus
Provides education, training, and support to parents, educators, service
providers, and community members to strengthen families, promote student
success, and achieve optimal childhood outcomes.
(877) 384-1769
Southeast Regional Center for Children and Youth with Special Health
Care Needs
Serves families and providers who care for
children and youth birth to 21 years of age with special health care
needs by providing resources, advocacy, and information including a
lending library as well as online database.
(800) 234-KIDS (5437) or (414)
266-6333
http://southeastregionalcenter.org
Team Up! With Families/Katy’s Kloset
Mission is to enrich, nurture and strengthen families of
children with special needs through its activities, services and
programs. Katy’s Kloset, a
service of Team Up with Families, is a medical equipment lending
library.
(262) 746-9034
Provides research, training, service, and outreach. Includes a Eunice
Kennedy Shriver Intellectual and Developmental Disabilities Research
Center and a University Center for Excellence in Developmental
Disabilities. www.waisman.wisc.edu/index.htmlx
Wisconsin Council on
Developmental Disabilities
Provides training and advocacy resources
(888) 332-1677; TTY/TDD (608) 266-6660
Provides resources and support group information to
families, helps resolve issues between families and school or other
agencies, works to improve education results for all children, and more
(414) 374-4645; toll free (877) 374-4677
Statewide not-for-profit organization run by families providing
advocacy, support groups, information, referrals, and education for
families with children and adolescents who have emotional, behavioral,
and mental disorders.
(608) 267-6888; parents call (800) 422-7145
Wisconsin First Step
Statewide information/referral hotline helping families and
professionals find resources for children and teens birth to 21 years
with special needs for services such as medical resources, assistive
technology, respite care, and more.
(800) 642-7837 Voice/TTY
Respite Care
Cerebral Palsy Agency of Racine County R.A.D.D.
(262) 633-0291
Children’s Service Society of Wisconsin
(414) 453 - 1400
Easter Seals Kindcare
(414) 571-5566 ext. 408
www.eastersealskindcaresewi.com
Integrated Community Resources of WI
(414) 453-3252
La Causa Crisis Nursery & Respite Center
(414) 647-5990
www.lacausa.org/eourprogspreven.htm
Oconomowoc Developmental Training Center
(262) 569-5515 ext. 3380
Respite Care Association of Wisconsin
(608) 222-2033
St. Ann Center
(414) 977-5053
Society’s Assets
(262) 637-9128
www.sai-inc.org/1024/Services/Services_Index.htm
United Cerebral Palsy of Southeastern
Wisconsin – Respite Care Program
(414) 329-4500 or toll-free (888) 482-7739 |
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